This agenda connects public signals with the foundation’s research questions. Not every dossier becomes a publication and not every signal proves a pattern. Each theme therefore shows which layer exists and which next step is responsible.
We use the labels below consistently across themes, projects and publications.
Where does a pathway lose ownership when several organisations each perform one part?
Recognition of handover problems, desk-to-desk pathways and coordination without authority.
Can a stalled pathway be reconstructed safely, transparently and reproducibly before claims are made about prevalence, harm or solutions?
Who safeguards not only the start of medication, but also review, guidance and a safe way back?
Accessible information and themed projects, currently strongest in Dutch with an English oxycodone platform.
Where does responsibility shift or disappear between prescribing, long-term use, tapering care and alternative or illicit routes?
When is late recognition condition-specific, and when might it indicate a recurring process pattern?
Dossiers on ACNES, ADHD and gastric-bypass aftercare show different routes towards late recognition or fragmented follow-up.
First define comparable concepts and process moments. The foundation does not yet have a formal research proposal or publication for this theme.
Available data is not yet a shared overview. An overview is not yet authority to act.
The current detailed PGO explainer is available in Dutch. The English site does not claim an equivalent resource that has not yet been produced.
Investigate which information is needed to reconstruct a pathway, who may lawfully combine it and which blind spots remain.
What happens when administrative correctness becomes more important than the outcome for the person behind the file?
I am not a number makes the human consequences of registration, standardisation and desk logic visible.
Develop bounded indicators for human consequences without automatically labelling every negative experience as a system effect.
For this agenda we need more than supporters: researchers, privacy specialists, people with lived experience and potential pilot partners who can challenge assumptions.
